A digital fundraising campaign to find money for the specialist treatment could save a little girl’s leg from being amputated. The campaign has managed to raise 70% of it’s target so far.
Six-year-old Kyra Warrell faces a £58,000 fee for treatment in Israel next month – supporters have so far raised £40,000.
Kyra, a pupil of Westdene Primary School in Brighton, could have to have her left leg amputated above the knee. This follows complications caused by the rare condition she has had from birth. If the money for treatment cannot be raised in time, surgery will be the only option.
Her mother, Rima, 39, from Westdene, said: “People have been incredibly generous and we’re only £18,000 away from our target of £58,000.
“It’s amazing how far we have come in such a short time.
“People have signed up to various challenges, organised walks and cake sales.
“But there have been some really touching moments too.
“A little girl donated her money earned from doing chores last week, a girl in Norway emptied her piggy bank and a six-year-old did a sponsored ‘colourathon’ so Kyra has 14 pictures for the trip – one for every day.
“We’ve also had people in Israel offer us a room for the night, to take Kyra out for her birthday, or to just sit by our side during Kyra’s four-hour operation so we’re not alone.
“A national newspaper commissioned a photoshoot which Kyra loved.
“We’ve learnt so much that we now want to help other families in our situation.”
“Kyra is six years old, bright, joyful and mischievous. Like any other little girl her age, she loves playing energetically with her friends. She is facing the prospect of having her left leg amputated above the knee, due to a deformity she’s had since birth.”
“Kyra has Proximal Focal Femoral Deficiency (PFFD), a rare condition affecting fewer than 1 in 50,000 children in the world. This means she has a deformed hip, a shortened left thigh and unstable knee and ankle. As her left leg is so much shorter, she needs to wear a bulky and heavy prosthetic to help her walk. This causes Kyra a lot of pain.”
“As she gets older, the deformity will become more pronounced. This means that her prosthetic will be more difficult to manage, and will lead to complications with her hips and spine”
Proximal focal femoral deficiency, the rare condition Kyra suffers from, affects fewer than one in 50,000 children around the world.
A specialist clinic in Israel is the only place where she can have surgery that would lengthen her leg.
Doctors in the UK are only able to amputate her lower leg so she can adjust to wearing a prosthetic leg.